Privacy Policy


Your online privacy is of great importance to the Sickle Cell Initiative (SSI). This privacy statement discloses SSI's policy concerning gathering and sharing of visitor's information through the SSI website.


Normal web site usage:
You can browse the SSI site without notifying us of your identity or without revealing any personal information about yourself. The only information we gather during general browsing is from standard server logs. These include your IP (Internet Protocol) address, domain name, browser type, operating system, and information such as the web site that referred you to us, the files you download, the pages you visit, and the dates/times of those visits.

Personally identifiable information
If you register for an e-newsletter, log into the SSI website, order a product, request for information, provide feedback, adopt a child, or make a donation you will be asked to provide personal information such as your names, postal address and e-mail address: this information is collected only with your knowledge and permission, and is kept in our electronic storage sites. When purchasing a product, making a donation or adopting a child on the SSI website, you may be asked to provide your credit card details - your credit card information is not retained by SSI. In some sections of SSI registering or supplying your personal information may set a cookie, cookies help recall your details the next time you visit the site so that you don’t have to re-enter the information. Third-party advertisers may also create and access cookies, which will be subject to their privacy policies – we accept no responsibility or liability for the use of such third parties’ cookies. If you do not wish cookies to be placed on your PC or handheld device, then they can be disabled in your web browser. The option to do so is normally found in your browser’s “security settings” section. Please note that permanently disabling cookies in your browser may hinder your use of our Websites as well as other websites and interactive services.

What does SSI do with the collected information ?

Normal web site usage
The information gathered during general browsing of the SSI website is used to analyze visitor statistics and usage of the SSI website and helps SSI improve the efficiency of the website.

Personally identifiable information
SSI may use the personal information collected to: Contact you (In reply to an inquiry, or to send to you e-newsletters, documents or publications, and also to confirm your product purchase or donation, adopt a child registration, general user registration on the website, and also to obtain payment for purchases made through the SSI site.

Opting Out

Providing personal information on the SSI site is optional. If you choose not to provide personal information, you can still browse and use the SSI site, but you may not be able to execute certain important actions such as purchasing products, registering, adopting or donating.
You are free to cancel or modify your information at any time by contacting us through the contact form


We do not sell or share any personally identifiable information provided on the SSI site to any third party. Security on our website is treated seriously. SSI employs industry standard secure data storage measures to protect all the information on our systems. Any administrators accessing provided personal data are committed to the confidentiality of all personal data.

Notification of changes & Contacts

Changes in this policy will be posted on our website, you are advised to check our Websites regularly to view our most recent privacy policy.

Contact Us

For questions or queries regarding this privacy policy, please contact us through the contact form